Megan Rebecca Parton (20/06/2006 - 20/07/2009)
Megan was born 20th June 2006, weighing 6 lb 2 oz.
She had trouble gaining weight and at 4.5 months doctors found she had bilateral cataracts, these were then removed in December 06',weighing only around 8 lb. In spring 07' Meg had a cold which made her refuse to eat and was losing weight so doctors intervened by giving her a nasal gastric tube in April 07', which has helped to a degree though has made her have bad reflux: she now weighs over 15 lb aged 19 months.
A skin biopsy was carried out shortly after the tubing began and the diagnosis of CS type 1 came in Aug/Sept 07'.
Meg is a happy child, loves to be sociable and 'talk' to people if they are within
her vision range, fixed at around a metre due to her contact lenses. She likes to
roll around on her play mat, though doesn't like to stay on her front for long. Meg
can hold and play with toys if they're small and light enough for her to hold, she
likes toys she can bang,and also bright-coloured and black & white toys. One of her
favourite toys is a soft furry zebra called Zebadee, whom she takes everywhere, she
likes to hit, eat, strangle and 'talk' to him.
Megan is due to have a PEG in March,
which we're hoping, along with a change of milk,will lessen her reflux and help her
gain weight more steadily and evenly.
Megan passed away July 2009 aged 3.
Donations:
